Cov menyuam ntxaib ntau haiv neeg: cov viv ncaus tau yug los nrog cov tawv nqaij sib txawv

2024 Tus sau: Richard Flannagan | [email protected]. Kawg hloov kho: 2023-12-16 00:06

"Tsis muaj leej twg ntseeg tias lawv yog menyuam ntxaib!" - hais tias leej niam ntawm cov ntxhais zoo, Kalani thiab Jarani. Qhov tseeb yog tias menyuam yaus tau yug los nrog cov tawv nqaij thiab qhov muag sib txawv: Kalani yog tawv nqaij tawv, lub qhov muag xiav thiab zoo li muaj plaub hau daj, thaum nws tus muam Jarani tau yug los nrog cov tawv nqaij tsaus thiab lub qhov muag daj. Qhov no tshwm sim hauv ib ntawm 500 qhov xwm txheej hauv khub niam txiv uas niam txiv kuj yog haiv neeg sib txawv. Niam hais tias, "Cov no yog cov menyuam yaus ua khawv koob," Thiab qhov no qhia meej meej tias vim li cas thiaj tsis muaj chaw rau kev ntxub ntxaug lwm haiv neeg hauv ntiaj teb no."

Dawb 25-xyoo-laus Whitney Meyer thiab nws tus hluas nraug African-Asmeskas Thomas Dean lawv tus kheej tsis xav tias yuav muaj xwm txheej zoo li no, tab sis lawv paub tseeb tias qhov no tsis yog qhov xwm txheej nkaus xwb, tab sis yog khoom plig los ntawm ntuj ceeb tsheej-tom qab tag nrho, qhov txuj ci tseem ceeb no tshwm sim tsawg heev Cov ntxhais tau yug lub Plaub Hlis dhau los, thiab thaum kuv niam pom lawv thawj zaug, nws zoo siab heev rau ib pliag. "Kuv nug tus kws kho mob vim li cas Kalani muaj tawv nqaij ncaj ncees. Kuv tsis nkag siab tias vim li cas nws thiaj txawv ntawm nws tus muam. Kuv txawm xav tias nws muaj albinism, lossis tom qab ntawd nws yuav tsaus dua. Tab sis tsis yog, nws tsuas yog qhov txuj ci tseem ceeb, thiab qhov txuj ci tseem ceeb nws nyob, "hais tias Whitney.

Cov menyuam ntxaib no hu ua dizygotic thaum tsis yog ib leeg, tab sis ob lub qe tau ua chiv. Yog li ntawd, cov menyuam ntxaib no muaj cov genotypes sib txawv, thiab lawv zoo li cov kwv tij thiab cov muam zoo li cov menyuam ntxaib peb tau siv, vim tias lawv tsuas muaj ib nrab ntawm cov noob uas sib phim, thiab qee zaum txawm tias tsawg dua. Lawm, qhov muaj feem yuav muaj menyuam yaus yog qhov tsawg heev - tag nrho cov menyuam ntxaib tsuas yog 1% ntawm txhua tus menyuam yug los, thiab tsuas yog ib ntawm 500 ntawm cov menyuam ntxaib no tuaj yeem muaj xim tawv nqaij sib txawv.

Niam hais tias "Tsis muaj leej twg ntseeg tias lawv yog menyuam ntxaib," - "Peb tawm mus rau hauv txoj kev, thiab cov neeg tsis paub pom tias cov ntxhais tau hnav zoo ib yam, tab sis cov me me sib txawv heev - thiab qhov no ua rau tib neeg tsis meej pem." Tab sis cov ntxhais sib txawv tsis tsuas yog nyob rau hauv tsos - lawv cov cim kuj sib txawv ntawm txhua lwm yam. Nws niam hais tias "Kalani yog menyuam yaus nrov heev." Nws nkag mus thoob lub tsev tsis tu ncua. Thiab Jay tsis nyiam dag, noj mov, thiab nyob hauv nws txhais tes."

Rau Whitney thiab Thomas, yug menyuam ntxaib yog qhov txuj ci tseem ceeb tiag. Thiab tsis tsuas yog vim lawv tshwj xeeb heev, tab sis kuj vim tias nws tso cai rau lawv muab cov me me no tsis muaj kev hlub uas nyob hauv lawv lub siab ua qhov iab iab tom qab lawv ob tug tub Pravin tuag ob xyoos dhau los. Praveen tau tawv-tawv, ib yam li Jarani, uas yog vim li cas Whitney niam thiaj li xav tsis thoob tias Kalani yug los dawb.

Whitney hais tias "Hauv peb tsev neeg, peb tsis quav ntsej txog xim tawv nqaij." Kev hlub yog kev hlub. " Whitney kuj tseem muaj tus tub hlob, Talan, los ntawm kev sib raug zoo yav dhau los. Talan yog tawv nqaij tawv, zoo li nws niam thiab txiv, tab sis rau nws nws cov viv ncaus zoo ib yam thiab hlub. "Hauv qhov no, nws yog, ib tus tuaj yeem hais tias, qhov muag tsis pom xim," - luag niam. - "Nws yog tus tij laug zoo tshaj hauv ntiaj teb. Thiab cov neeg hauv lub tebchaws no yuav tsum kawm los ntawm nws. kev ntxub ntxaug cuam tshuam nrog xim tawv nqaij … Koj nyiam tus neeg lossis koj tsis nyiam."

Simon Hopper, leej txiv ntawm plaub (!) Cov ntxhais, ob tus uas yog menyuam ntxaib, muaj nws tus kheej Instagram, uas nws tau txiav txim siab los qhia tias yam khoom nyob hauv tsev neeg loj npaum li cas. Raws li qhov tshwm sim, ntau dua 200,000 tus neeg nyeem tau sau npe rau nws tus account Instagram, thiab koj tuaj yeem pom cov duab lom zem tshaj plaws hauv peb tsab xov xwm " Txiv ntawm plaub tus ntxhais".